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DTSTART;VALUE=DATE:20200201
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UID:5081-1580515200-1583020799@www.your-future.co.uk
SUMMARY:Raynaud’s Awareness Month
DESCRIPTION:Together\, we can create a better world for people with Scleroderma and Raynaud’s. \nWe need you to continue to raise your hands and help increase awareness and understanding of Raynaud’s and why it is important that everyone knows the signs and symptoms to look out for. \nGet involved in Raynaud’s Awareness Month 2020 in February\, click here for information on some of the things that you can do. \nhttps://www.sruk.co.uk/get-involved/raynauds-awareness-month/
URL:https://www.your-future.co.uk/event/raynauds-awareness-month-2/
CATEGORIES:Health Awareness Events
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DTSTART;VALUE=DATE:20200229
DTEND;VALUE=DATE:20200301
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UID:4840-1582934400-1583020799@www.your-future.co.uk
SUMMARY:Rare Disease Day 2020
DESCRIPTION:Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives.The campaign targets primarily the general public and also seeks to raise awareness amongst policy makers\, public authorities\, industry representatives\, researchers\, health professionals and anyone who has a genuine interest in rare diseases. \nBuilding awareness of rare diseases is so important because 1 in 20 people will live with a rare disease at some point in their life. Despite this\, there is no cure for the majority of rare diseases and many go undiagnosed. Rare Disease Day improves knowledge amongst the general public of rare diseases while encouraging researchers and decision makers to address the needs of those living with rare diseases. \nRare Disease Day events are down to hundreds of patient organisations all over the world who work on a local and national level to raise awareness for the rare disease community in their countries. Since Rare Disease Day was first launched by EURORDIS and its Council of National Alliances in 2008\, thousands of events have taken place throughout the world reaching hundreds of thousands of people and resulting in a great deal of media coverage. We especially thank our official Rare Disease Day partners\, the National Alliances. These are umbrella organisations who group together several rare disease organisations in a given country or region. Click on a logo of one of the National Alliances to go to their website. \nThe campaign started as a European event and has progressively become a world phenomenon\, with the USA joining in 2009 and participation in 94 countries all over the world in 2018. Hundreds of cities continue to take part in Rare Disease Day and we hope even more will join in 2018. \nSome countries have decided to raise rare disease awareness further\, for example\, Spain declared 2013 as the National Year for Rare Diseases. The first Rare Disease Day was celebrated in 2008 on 29 February\, a rare‚date that happens only once every four years. Ever since then\, Rare Disease Day has taken place on the last day of February\, a month known for having a rare‚number of days. \nhttps://www.rarediseaseday.org/
URL:https://www.your-future.co.uk/event/rare-disease-day-2020-2/
CATEGORIES:Health Awareness Events
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